touretteshero.com is a place to celebrate the humour & creativity of Tourettes.
It’s not about mocking or commiserating - it’s about reclaiming the most frequently misunderstood syndrome on the planet and…
Changing the World One Tic at a Time
I’m currently going through the process of renewing my Access to Work support. This is particularly daunting because last year’s renewal went very badly and the vital support I need to do my job was cut without warning. Since then I’ve learnt about many other disabled artists facing similar brutal cuts, including my friend and disability arts legend Jenny Sealey.…
I want to start this post with a significant caveat – attempting to talk about complex, emotive and highly charged issues within the constraints of the frenzied news cycle is difficult and unpredictable. Still, as the story of John Davidson’s tics at the BAFTAs last night continues on, I think it’s important to try and respond.…
I’ve spent the last few days gathering evidence for the Public Accounts Committee inquiry into Access to Work. It’s becoming increasingly clear that huge, devastating changes are planned by the Government to Access To Work (ATW) and the future of many working disabled people and those they employ, hangs in the balance.…
Content Warning: Description of death
I don’t know exactly where to start with this, so I’m going to get the devastating news out the way first. Then I can focus all my attention on paying tribute to an epic friend.
Last week my long-term creative collaborator, and one third of the Tourettes Bipolar Alliance, Christopher ‘Captain Hotknives’ Smith died suddenly at home.…
Can you believe it’s been nearly three years since we launched our brilliant Zine, The Department for Wonder and Play? Now that we’ve got two volumes and two launch events under our collective belt, it feels like a good time to do it all over again!…
Supporting disabled-led thinking has been an important part of Touretteshero from the beginning, and over the last few years our research programmes have grown under the care of our Director of Research, Dr Will Renel. This got an added boost last year when Dr Chloe Trainor joined the team to coordinate our Knowledge for Change project.…
Often when I write these posts I’m doing it with a wide audience in mind, but this one is slightly different. While everyone’s welcome to read it, it’s particularly aimed at funding bodies, grant administrators and leaders across the arts and cultural sector, and it’s an urgent message.…
We’re a month away from Valentine’s Day, and if like Touretteshero, you and your family love inclusive, disabled-led, creative play, our event Return of the Rebels on Saturday 14th February is for you.
We’ve teamed up with the Whitechapel Gallery for Return of the Rebels, the second free, Rebel Play event that uses the positive play experiences of disabled children and adults as a creative springboard.…
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