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Superhero or not, I still catch a cold every so often and for the last few days I’ve been out of action with a stinker. I’ve written before about how being under the weather affects my ‘ticcing fits’ –basically, they get much worse.…
Superhero or not, I still catch a cold every so often and for the last few days I’ve been out of action with a stinker. I’ve written before about how being under the weather affects my ‘ticcing fits’ –basically, they get much worse.…
I had a new carer this evening. She came from the agency that provides me with some of my support. She was friendly and kind and in the usual way, I took her through my care plan for when I have a ‘ticcing fit’.…
Yesterday you got my perspective on our weekend in Scotland. Here’s my co-adventurer, Ruth’s, take on it:
The weekend that almost never happened, happened – I’m so glad Touretteshero called me and gave me a gentle yet firm nudge in the right direction when I was thinking about not going.…
I’ve been looking forward to writing this entry and filling you in on my trip to Scotland to visit friends, many of whom also have Tourettes. It’s been one of the most amazing weekends I’ve had in ages.
Warm Welcome
Ruth, Claire and I arrived late on Friday night to be met at the airport by our friend Pauline.…
It’s very late, and I’ve just got back to the castle after my weekend away in Scotland with Ruth and Claire. I’m exhausted so I’ll keep this entry simple.
Ruth and I ticced a lot of strange and potentially inflammatory things in the airport and on the plane, but everyone was fantastic – security staff, crew, and other passengers.…
“My mum’s on a roller-coaster in Scotland, trapped by a bear.”
“My dad’s not here, he’s walking around naked in Scotland.”
Neither of my parents are actually in Scotland, but I am. I’m visiting my extended Tourettes family up here.
Despite all the talk of bombs at the airport, we made it past security and onto the plane without a hitch.…
My brain may be in Scotland but the rest of me hasn’t got there yet. But it will soon.
In a few hours Ruth, Claire and I will leave work, converge on Victoria Station, get on a train to Gatwick Airport and get test the accessibility of a well-known low budget airline.…
Here is what I ticced over lunch:
“Ive got all the lalias”
“Echolalia”
“Palilalia”
“Rambolalia”
“Discolalia”
Don’t’ bother looking the last two up. The first two are specific symptoms of Tourettes. The second two aren’t.
Fat Sister laughed and asked, “What’s Discolalia, compulsively copying someone else’s dance moves?”…
If you’ve been following the blog recently you’ll know it’s been a hectic time for me recently with all the sudden media interest in Touretteshero. Today, the message is about to go global via an interview with Matthew Bannister on the World Service.…
This morning I had a ‘ticcing fit’ while I was having a shower. I managed to turn the water off but I was stuck in the bath for a while before I could get the bath lift to make me level with the edge.…
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