My support worker Sophie lives in Cuba for half the year, to escape the winter here, and comes home for the summer. This year her boyfriend Lazaro’s come with her. They’ve been staying at the castle for the last few days and it’s been lovely getting to know him.…

I have a seatbelt on my wheelchair. For me it’s essential because my body moves around unpredictably.

I’m having an on-going battle with my belt – it needs tightening all the time because it gets stretched out by some of my big full-body tics.…

This afternoon Will and I went to our local Town Hall for a meeting.

We passed a member of staff in the corridor and I found myself making the following three statements:

“You need a hair cut.”
“I like your shoes.”…

‘Face-planting’ meaning landing face down in a plate of food should be a familiar enough subject to anyone who’s spent any time watching comedy clips on YouTube.

Today I’ve managed to face-plant into food – twice! Fortunately for me there were no cameras around to record these messy moments.…

This morning I was sitting down minding my own business when an entire ticced poem suddenly burst out. I quickly pressed record on my phone and managed to capture this:

You’re cold, you’re wet, you’re dark,
You’re the end of a song and the beginning of a dream.…

Last month I wrote about being late for a meeting because of a bus driver refusing to let me on because there was a buggy in the wheelchair space. He simply kept the doors shut, said the space was “first come first served”, and drove away.…

It’s been gloriously sunny and this evening Will and I soaked it up as we went from work to a pub in Brixton, with him pushing his bike and me pushing myself in my wheelchair. We were off to meet our friends Bunny and Fran for a drink.…

For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.

This morning Fran, Will, Lottie and I packed the car with two tents, two wheelchairs and more glitter than four people could ever need, and headed for Somerset.…

Six months ago today (can it really be that long already?) I started the year with a special announcement – that 2015 is Touretteshero’s fifth year, and as part of the celebration I asked readers to complete our birthday survey. We wanted to take the opportunity to reflect, improve and set ourselves up for the next five years.…