Ruth was supporting me as usual last night, but she didn’t come alone – her niece, Shaniah, and nephews Adoni, Zackiah and Shiloh came too.

The first thing Shiloh asked was ‘Can we play in your wheelchair?’ This is a favourite activity and previous sleepovers have seen wheelchair dancing, wheelchair mazes, and wheelchairs loaded up with pigs.…

It’s just over four months since my gran died and today something arrived at the castle that made me think of her and that day again.

It’s a photograph by Ray Collins of a wave, suspended in motion so it looks like a mountain.…

This time next week Leftwing Idiot and I will be jumping on a train and heading up to Edinburgh for the Fringe Festival. All being well, Jess Mabel Jones (AKA Chopin) and our producer, Jolie, will meet us at the station.…

I’ve just had a shocking wheelchair crash caused indirectly by the rain that’s been thundering down all day. And it wasn’t because the ground was slippery, as you might have expected. So I’d better start at the beginning.

Earlier this evening I went for dinner with Lottie, Will and his sister Rachel.…

Sometimes my tics suddenly pluck a word out of obscurity and through tone, pronunciation, and obsessive repetition, turn it into something surreal.

Today, “mottled” was in for this treatment.

It’s not a word I’ve ever given much thought to, let alone said.…

Yesterday evening I hit the wall – a physical wall and a wall of tiredness.

It’d been a busy day and by 11pm I felt my body giving up. I moved from feeling fine to being overtaken by the discomfort of constant tics.…

This evening I sat in the Nature Garden at work surrounded by colleagues, the large green canopy protecting us from gentle drizzle and the barbecue smoking away nearby, loaded with delicious food.

It felt perfect except for one thing. We were saying goodbye to Nathalie.…

I mentioned my search for a new support worker a couple of weeks ago. I’m looking for someone to help me at work on a full-time basis. Until now this has been done by a team of different people all working different days.…

Two months ago I shared an open letter to Leon Daniels, Managing Director of Surface Transport for Transport for London (TfL). I wrote to him following an upsetting incident when a bus driver refused to let me board his bus because there was a buggy on board.…

This morning I took part in some research being conducted by the Movement Disorder team at the National Hospital for Neurology and Neurosurgery.

This study involves collecting data from the brain using an electroencephalogram, more commonly know as an EEG. EEGs record the electrical activity of the brain through a network of electrodes placed on the scalp.…