Last year Leftwing Idiot bought me some lavender spray to help me sleep.

My overnight support workers often spray some on my bed as I settle down to sleep and I often refer to them then as my Lavender Fairies.

Last night was a bad night for me – kept awake by pain I struggled to sleep.…

I have an unusual and fluctuating relationship with the lamp-post I can see from my bedroom window.

I scold, nag and insult it on most nights.
But I also invite it into my bed when it’s cold.

I deride all lamp-posts at every opportunity.…

It’s been a tough day, not because anything dramatic has happened but simply because I’ve been feeling lousy.

This isn’t a one off– I’ve been struggling with chronic pain, nausea and fatigue for months.

I’ve got used to feeling ill, to waking up overwhelmed by nausea, to constant nagging pain in my back and hips, and to fatigue muddling my thoughts.…

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing Idiot was sunbathing in the garden.…

I studied drawing at art college and really got into mapping the world around me in various ways. I was particularly interested in how objects, people and spaces connect.

I’ve been in a lot of pain today so I’ve stayed in bed and taken it very easy.…

A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible.

The surveyor was late and while we waited I quizzed my OT about how other disabled people had made their kitchens more accessible.…