It’s New Year’s Eve, a time when we take stock of the year that’s been and look ahead to the next. Usually, I write a post about everything that’s happened, but this year I decided to represent it as a drawing instead.…

Tomorrow is Christmas Eve. I’ve got this week off, but I can’t relax quite yet because there’s a load of disability-related admin I need to complete. This includes doing the monitoring for my personal budget, emailing the occupational therapy team about a review, and calling Access to Work about some new equipment I need.…

Almost every year since starting Touretteshero we’ve made a funny Christmas video. My favourites include this animation and this royal message. Last year we kept things simple and shared a heartfelt message of solidarity.

When it came to writing this year’s message, I just wanted to say what was on mind – the unchecked COVID-19 infections and the reality that those of us with additional risk factors are being left behind.…

I’ve just about finished my Christmas shopping. It’s always a complicated process for me because I have to leave deciding who’s going to get what until the last minute so my tics don’t spoil the surprise. But this is obviously harder with very personal gifts.…

Every year since Touretteshero began, we’ve created a Christmas card inspired by a festive tic. We’ve had some amazing guest artists including Jim’ll Paint It, Amber Anderson, Ben Connors and Richard Phoenix.

We usually do a big mail-out and send cards to our partners, collaborators, friends, and allies, but this year we’re doing things differently.…

As you probably know, for the last couple of months we’ve been sharing the ideas and creative projects of artists supported by our Young Artist Development Programme. Today it’s the turn of Maria Bradley whose playful illustrations and insightful words communicate her experiences of tics – let’s meet Maria and tickles.…

I’ve been in a lot of pain this week, in fact not just in pain, but also feeling very sick, which is usually well managed by medication.

Pain and nausea aren’t great on their own, but the combination of both floors me.…

Over the last two months we’ve been sharing the work and reflections of creatives supported by our Young Artist Development Programme. This week it’s over to musician and writer Sorcha Pringle.

Hello, my name is Sorcha and I’m a disabled creative activist, community musician, composer, and access consultant based in Dundee.…

I find transitioning from one activity to another tricky. I struggle with planning my time and understanding and the order in which I need to do things. This is particularly hard when I’m tired, so bedtime is often a flash point.…

Yesterday was BBC Children in Need day. Schools and workplaces held collections in the lead up to an evening extravaganza of celebrity-led TV fundraising. The money raised will fund life-changing work across the UK.

Children in Need has been around since 1980 – just like me – headed up by Pudsey, the eye-patch-wearing-bear, who I recently learnt was only allowed to smile in 2007 – that’s almost thirty years of non-stop frowning.…