Yesterday was Sunday and early spring sunshine poured into the castle all day. I had a lovely weekend of haircuts with my family and joining Leftwing Idiot for a run round the park – typical restful weekend activities.
But there was one less restful activity, something many people don’t have to worry about: going through my Personal Health Budget form as part of my annual review.…
I’m a vulnerable adult.
I’ve been thinking a lot recently about what this means.
Maybe it’s because of the pandemic and how often the word ‘vulnerable’ is used: it’s gone viral. In this context vulnerability is presented as an individual problem.…
Tomorrow is Christmas Eve. I’ve got this week off, but I can’t relax quite yet because there’s a load of disability-related admin I need to complete. This includes doing the monitoring for my personal budget, emailing the occupational therapy team about a review, and calling Access to Work about some new equipment I need.…
On Friday I got an email confirming that the funding for my care at home has moved from Social Services to the NHS. This is known as a Personal Health Budget (PHB). They also sent me a breakdown of the hours and costs involved, and this is the first time in over a decade that I’ve fully understood both my support plan and the money that relates to it.…
The Conservatives have been in power for over decade now, and right from the start they’ve been promising a big announcement of a plan to ‘fix’ social care. As a Social Care user this has always made me very nervous because politicians, especially the Tories, understand very little about the reality of disabled people’s lives.…
It’s the Conservative Party conference this week and it’s been all over the news.
This afternoon Prime Minister Boris Johnson gave a speech about ‘levelling up’. I’m not sure what this means for the country and I’m fairly sure Boris doesn’t either, but I do know what it means for my tics:
“Boris Johnson levelling up with stilts made of shit.”…
I wrote recently about burn out and the steps we take at Touretteshero to help prevent it. While I’m lucky not to get burnt out by my work as an artist, I’m feeling utterly exhausted by the relentless work of being a disabled person living in the UK.…
This July marks ten years since I made a life-changing phone call. It was one I’d put off for months and would be the start of a process that’s happening to this day. On 12th July 2011 I called social services about myself – and it was one of the best decisions I’ve ever made.…
It’s the end of the month and that means it’s time to hear from resident guest blogger Serena. This month Serena’s sharing her experience of job hunting as someone with Tourettes. While job hunting is stressful for lots of people, I’m very aware of the added pressures that having Tourettes can bring.…
Content warning: This post contains descriptions of medical and social risks affecting disabled people that you might find distressing.
I got a call from my local Council’s ‘COVID-19 Support Team’ today. They were checking in with me because I’m one of the 2.2 million people who’ve been identified as ‘clinically extremely vulnerable’ to COVID-19-19.…
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