It’s Friday evening and I’m exhausted and sad. Ines, my support worker, is changing my sheets in the other room, Gogglebox is on in the background, and I’m fighting back tears, and have been all afternoon and evening.

As a warning to you, I’m not feeling very proud of, or positive about my neurodiversity at the moment, and I’m feeling annoyed and worn out by my own behaviour.…

Last year I wrote about an approach to help manage challenging situations that I’d been introduced to – it had as its acronym: STOP. I created a drawing to go with it to help me and my support team remember it.…

It’s almost the end of the Easter holidays and I’m back at work after some much-needed time off. But it’s not just regular holidays that are important to my wellbeing: short breaks every day have always been crucial to helping me study, work and stay focussed.…

Leftwing Idiot, among other things, is a self-confessed Sneaker Head. As he often reminds me, he’s been that way since secondary school when having the wrong pair of trainers was a risky business. Apart from the occasional wild goose chase across town for an exclusive release (and a controversial amount of storage space in the castle) this obsession has had very little negative impact on me.…

We’re a year into a global pandemic and it’s disrupted most people’s lives significantly. It’s been a period of sustained uncertainty, with the way our society works repeatedly and abruptly changing.

While this will have been tricky for most people there are some specific new challenges for people with tics, as guest blogger Serena touched on at the end of last year.…

Today is International Wheelchair Day – to me this is like Valentine’s Day, but for wheelchair users and their chairs. 

It’s almost ten years since my tics began having a significant impact on my mobility. I’d had an unusual walk for a long time but over the course of 2011 my mobility went from being unpredictable but functional to dangerous and extremely hard work.…

It’s been almost a month since Katie joined the Touretteshero team as our new Solidarity Worker. She’s working on some exciting projects that we hope will provide better support and creative opportunities for children, young people and adults in our communities.…

This year it will be a decade since I started experiencing daily tic attacks – these are episodes of intense tics that look seizure-like and need similar management.

During these episodes I nearly always lose communicative speech. This means I can’t choose the words I say, but I still have vocal tics, which range from simple repetitive noises to complicated sentences.…

Back in November I wrote about the risk matrix we created to help make quick decisions on how we work in relation to the COVID-19 pandemic and our own capacity. The matrix builds on our initial COVID-19 statement from March last year which explained why we’d be focusing on essential work only.…

So we’re in 2021 and the New Year is often a time to reflect on the changes we’re going to make in the year ahead. Eleven years ago it was the New Year that prompted me to start writing this blog, and it will be ten years ago this year that I started being open and honest about the episodes of intense tics I was experiencing.…