Content warning: This post contains descriptions of medical and social risks affecting disabled people that you might find distressing.
I got a call from my local Council’s ‘COVID-19 Support Team’ today. They were checking in with me because I’m one of the 2.2 million people who’ve been identified as ‘clinically extremely vulnerable’ to COVID-19-19.…
Time in lockdown is passing very quickly and that’s great news because it means it’s now time for another guest post from writer Serena Bhandari. In this post she discusses the challenges of finding the right people to live with.
Over to you Serena.…
Three years ago today, on the morning of Wednesday 14th June 2017, the country woke to the news of a devastating fire at Grenfell Tower. Later we would learn that 72 people, 18 of them children, had lost their lives. I’ll be marking the anniversary of this tragedy by filling the castle windows with green light in solidarity with Grenfell United and all those affected by the fire.…
Yesterday I wrote about a new series of blog posts we’ve commissioned by writer Serena Bhandari. I’m really excited to share Serena’s first post today.
My name’s Serena and this is the first in a series of guest blogs I’ll be doing for Touretteshero.…
Over the last couple of days I’ve felt a lingering sadness. This isn’t surprising given that we’re living through a global pandemic, but there was a bit more to it than that – I just couldn’t quite work out what it was.…
Since his first day in Number 10, Prime Minister Boris Johnson has been promising a plan to reform our ailing social care system. It’s something that successive governments have been promising for at least a decade, but so far, no workable proposals have been put forward.…
Like many people, I’ve been having lots of video meetings for work recently. I experience chronic pain and fatigue which makes it hard to take part in these calls if there aren’t clear agreed expectations.
I was thinking about this earlier, so I turned the things that help me into a list of top tips.…
Today, out of the blue, there have been a series of announcements about travel in London that are seriously concerning many disabled people. Moving about this vast city as a disabled person can be tricky with a transport system that’s already far from equal.…
On a Friday exactly two months ago, my working week was drawing to an end. It’d been a busy week, full of meetings and rehearsals for a forthcoming tour of our stage show ‘Not I’.
With hindsight there were a few things that might have hinted at the cataclysmic changes that were around the corner, but at the time I was caught up in work and hadn’t paid much attention to meetings being cancelled or re-located, and all the elbow-bumping instead of hand shaking.…
Last night I wrote a post while I was in intense pain and struggling to sleep. I wrote to help me focus on what I was feeling and to find a way through. To some extent it worked, and with the additional help of some distracting feline affection from Monkey and some great podcasts, I was at last able to get to sleep.…
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