A couple of days ago I momentarily trapped my finger in my wheelchair’s footplate the result was a sizable blood-blister on its tip.

Earlier today I had a ‘ticcing fit’ and, as often happens, I lost my speech. Fortunately I’m still able to communicate ‘Yes’ and ‘No’ using the blinking technique, and most of my support works can tell how much pain I’m in by the noises I’m making.…

On Friday my support worker Will and I went round to the Nature Garden where I work. When we arrived a small group of boys were there, busily making biscuits. They were all about five years old and I hadn’t met any of them before.…

It’s late and I’m in bed. In the next room I can hear murmuring, gentle singing, occasional bickering and the unmistakable sound of wriggling. I can also hear Ruth’s tics. Ruth’s staying over tonight to do my support and she’s brought her nephew Adoni (aged 8 ) and her niece Shania (aged 11) with her.…

I was moving about quite a lot during a ‘ticcing fit’ the other day and Zoë, who was supporting me, was struggling to keep my limbs under control. While this was going on I ticced “Whack Attack!” This is a children’s game in which little plastic heads pop up randomly from a board and you have to hit them back down with a plastic hammer.…

Last week at work I had a ‘ticcing fit’. It started suddenly in the middle of a big group activity with loads of children around. My support worker Hannah and my colleagues were quick to respond. Fran, who’s previously provided me with a lot of support, was working that day and she came to help manage the fit.…

I haven’t been very well for the last few days so yesterday morning I went to the doctor, supported by Poppy. We’d only been in the waiting room for a minute or so when a boy, aged about two and a half, made a beeline for us.…

The summer holidays are always the busiest time of year at work and all three of the children’s projects I help run started their playschemes on Monday. My role includes lots of fundraising, developing services, and supporting more than fifty volunteers.…

Over the last few months the organisation I work for has been gearing up for the Ruby Do – a big, accessible, family event celebrating creativity, inclusion and forty years of providing adventurous play opportunities for local children.

All week I’d been obsessively checking the weather forecast, hoping for a beaming sun symbol, but instead I was greeted with icons for thunderstorms and rain.…

I’ve written lots of times about the difficulty of keeping secrets when you’ve got Tourettes. Two such occasions were when my friend Laura told me she was pregnant with each of her children before she’d shared the news more widely.

Both times Laura told me her news in person, over dinner.…

Twelve-year-old guest blogger Dylan is back with some excellent news, a brilliant blog and a fantastic job opportunity. I’ll let Dylan explain…

I’ve got some good news: for four hours per week I’m getting help at home (maybe going places…Ace!…