At the end of last week, during a what’s app hang out with Fat Sister, Bean and King Russell, there was a lovely exchange that got me thinking – and making.

Bean asked if my support worker Claire was my mummy!…

Last night I wrote a post while I was in intense pain and struggling to sleep. I wrote to help me focus on what I was feeling and to find a way through. To some extent it worked, and with the additional help of some distracting feline affection from Monkey and some great podcasts, I was at last able to get to sleep.…

This pandemic’s making everyone re-evaluate their relationship with touch, whether that’s contact with other people, our surroundings, or even our own bodies. Last June I wrote about the role physical touch plays in my life, and for a week I recorded every time I was touched.…

At the start of lockdown my friends Ruby, Leo and Laura made me an incredible word-search which I had loads of fun completing, so I decided to make one for them. But rather than use words I used combinations of pictures.…

From the very beginning, Touretteshero’s focused on providing creative inclusive events for disabled and non-disabled people of all ages. This is a crucial part of our activism and we often talk about the importance of providing spaces where disabled people can be themselves exactly as they are, without compromise or judgement.…

My sister is a hospital doctor. She lives across the road from me with her husband King Russell and my niece Bean. They’re less than a hundred metres away and you can even see my place from their top floor.

The longest I’ve gone without seeing my sister since she was born is six weeks, and that’s only happened a handful of times.…

Just over a week ago it became clear that in order to stay as healthy as possible during the current COVID-19 pandemic, I needed to self-isolate. I always need close physical support from others to complete many essential daily tasks like washing or moving in and out of my chair, but this close contact increases the risk of me catching the virus or me passing it to others, so I also decided to limit the number of different people providing my support.…

Before working full time for Touretteshero I was an inclusive playworker. This means I’ve got a lot of games stored in my brain which until recently I’ve had much less use for. But now this pandemic has come along I’m reaching for them so I can share them with the parents, carers and children care about, in particular my niece Bean who’s almost three, and my God-kids Leo and Ruby who’re seven and eight.…

I’ve been indoors for a week now due to the COVID-19 pandemic, and from tomorrow children across the country will also be at home as most of the schools have closed.

One of the first things I did for myself when I knew I was going to be spending a lot of time at home was make a schedule to help give my day a routine and to make sure that I still ate and rested at sensible times.…

Back in January we announced the exciting news that Touretteshero had been given a grant from Arts Council England’s Elevate Fund to develop and grow our team and the work that we do.

Our mission is to use Tourettes as a catalyst for celebration and social change – we want to be part of creating a more inclusive and socially just society for both disabled and non-disabled people.…