So that’s another year done! In just a few hours we’ll say goodbye to 2023 and welcome in the New Year. For the Touretteshero team, 2023’s been a year of contrasts. We’ve had incredible moments of joy, making and touring new work and becoming an Arts Council England (ACE) National Portfolio Organisation (NPO), and Biscuitland was nominated for a BAFTA!…
I’ve been unwell for over a week with a cold or some other miscellaneous virus I picked up from a colleague. While I’ve felt pretty ropey the illness itself has been nothing out of the ordinary, but it’s dragged on, and whenever I’m unwell, particularly with any sort of infection, the seizure-like intensifications of my tics increase dramatically.…
Yesterday we arrived in Torquay for stop six of our tour of eight UK towns and cities with our new show Burnt Out In Biscuit Land. We’ve been to Bridlington, Gloucester, Bradford, Margate and, most recently, Peterborough. After Torquay we head to Stoke-On-Trent and lastly, Wigan.…
Last year I led a creative project called Invisible Touch. It explored the relationship between physical touch and the experience of giving and receiving care. As part of this I interviewed other disabled people who had experience of care, and you can find them here.…
Preppers are people who plan for emergencies in practical ways. Exactly what they’re preparing for varies but can include natural disasters, economic crisis, civil unrest, or a zombie apocalypse.
Prepper culture focuses on self-reliance, making detailed plans, stockpiling essentials, and doing everything possible to support survival in a catastrophic breakdown of society.…
Over the last couple of weeks, the Touretteshero Team has been resting and relaxing, the Christmas holidays being the only time each year that we all stop together. This has given me a chance to think about everything we’ve done together this year.…
“Biscuit” has been one of my regular tics for many years. I don’t know exactly when it started, but by early 2011 I was very biscuity! I once worked out that I tic “biscuit” about 16,000 times a day, so unsurprisingly it’s a word that lots of people strongly associate with me.…
I’m sad today. I feel worn out and worn down. I’m frustrated by the physical reality of my body and with how I’m dealing with it. In the last few weeks my energy levels have plummeted for no obvious reason, and they were already pretty low.…
When people think about what it means to require care, especially if it’s 24 hours a day as I do, they often think of it as a ‘worst-case scenario’. For me, this couldn’t be further from the truth. Having a package of support that meets my needs gives me the independence to live and work as I choose.…
I woke up this morning to feelings I haven’t experienced in almost three years. It’s the unique mix of tiredness, contentment, and relief that follows any largescale activity we’ve ever organised. Last night the Touretteshero team held our first big event since the start of the COVID-19 pandemic in March 2020.…
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