I’ve just come through to my bedroom to go to bed. The main light was off already and my bedside light was glowing gently. Two Baclofen tablets were laid out ready for me to take, one at midnight, one at 6am.…

For anyone with uncontrollable movements in their arms, soup isn’t usually the best choice on the menu, and although my bowl was full of chunks of bread to help keep it under control, I still managed to make a mess.

The reason: a recent memory from our last night in Edinburgh.…

Tonight we welcomed our last Edinburgh audience into Biscuit Land. It was an amazing show – in the first few minutes Teddy Ruxpin got run over on my command by Euan of brilliant Euan’s Guide fame, I bit the magpie that sits on the back of my chair during the show, and Chopin’s monologue, which I’ve heard many times before, moved me all over again.…

I woke feeling strangely tense and have felt the same almost all day. There was no particular reason for it and it made me gloomy and irritable. But this evening something happened that broke this feeling – but it also broke my wheelchair.…

I’ve just come off stage after my first ever stand-up comedy gig. This is daunting enough for anyone at the best of times, but thanks to my tics I never know what I’m about to say next. There’s an element of Tourettes that’s saying the least appropriate thing in any situation – so because my mum and dad were in the audience, a lot of my set turned out to be about Fat Sister’s sex life.…

Thanks to Poppy at one end and Chopin at the other, Leftwing Idiot and I have made it safely to Edinburgh. Leaving a scorching London this morning we were very soon reminded that it’s much colder up north.

We’ve settled into the flat, our home for the next week or so, and we’ve been taking the opportunity to have a look around.…

Ruth was supporting me as usual last night, but she didn’t come alone – her niece, Shaniah, and nephews Adoni, Zackiah and Shiloh came too.

The first thing Shiloh asked was ‘Can we play in your wheelchair?’ This is a favourite activity and previous sleepovers have seen wheelchair dancing, wheelchair mazes, and wheelchairs loaded up with pigs.…

It’s just over four months since my gran died and today something arrived at the castle that made me think of her and that day again.

It’s a photograph by Ray Collins of a wave, suspended in motion so it looks like a mountain.…

I mentioned my search for a new support worker a couple of weeks ago. I’m looking for someone to help me at work on a full-time basis. Until now this has been done by a team of different people all working different days.…

This evening Harriet and I went to meet Leftwing Idiot, Fat Sister, King Russell and their friend Gareth in a bar near the Castle.

I’ve met Gareth loads of times, but it seems that one of my tics from our last encounter has had a big impact on him.…