I was chatting to my friend Laura on the phone this evening, sitting on my bed looking out of my window. A familiar flicker in the middle distance caught my eye, and my tics responded instantly

“Good evening lamp-post.”

I’ve been away from the castle for much of the summer and since I’ve got back I’ve been better at remembering to shut my blind at night.…

After we’d been to the theatre last night Will and I went to a Thai café in Waterloo. We had to wait for a table but I’ve been there before so knew it would be worth it.

When we were seated we studied the menu carefully.…

I’ve spent today at the seaside – Littlehampton to be precise. We took a group of children from work on end of summer trip. From the moment we arrived I knew we’d have a great day. The atmosphere was friendly, the staff at the small fairground were laidback, and there’s a lovely little beach, which I became a lot more closely acquainted with than I’d anticipated.…

Yesterday I wrote about how my tics have been changing – my body certainly has been doing some odd stuff recently. Today’s newcomer was a horrible screeching noise that I was making for most of the afternoon.

My phase of saying “I’m a baby” was annoying enough, but this high-pitched screech is a lot worse and I’m not even sure how I’m making it.…

The sun’s been out for most of the day and Shambala’s looking beautiful, with people in colourful costumes everywhere. I’m not doing a show today so I’m able to relax properly.

Captain Hotknives did have a show though, a solo set in the Wandering Word tent.…

I woke up in a warm tent and crawled out into the dewy day. King Russell and Fat Sister, camped opposite, were already up and about. They were making tea on a portable stove and I sat with them, surfacing slowly.…

At ten o’clock Fat Sister and King Russell arrived at the castle, soon followed by Bunny’s brother Pete. He’s one of my two main support workers at Shambala, with Eoin, the other half of the team, meeting us on site.

We had a tense time packing the small car with four people’s-worth of stuff, two tents and one all-terrain wheelchair.…

We’ve been in Edinburgh for a week now, and I’m settling into life in a new city.

One of the things I was finding difficult to imagine before we arrived was how each day would pan out, what support I’d need and when I’d need it.…

From the living room window of our flat in Edinburgh we can see Arthur’s Seat, the majestic hill that sits right in the heart of the City.

Today was our day off, with no performance of #BIBL, and because it was sunny and warm we decided to go for a walk up what my tics have been calling “Arthur’s Stool.”…

Fat Sister’s having a party tomorrow, and I’m not invited!

Surely this must be the ultimate snub! It became apparent last night that we were on the brink of a big social event, and I didn’t get a look in.

Loads of my friends have been asked to go, including Poppy, Leftwing Idiot, and my support worker, Sophie.…