I wrote recently about burn out and the steps we take at Touretteshero to help prevent it. While I’m lucky not to get burnt out by my work as an artist, I’m feeling utterly exhausted by the relentless work of being a disabled person living in the UK.…

In January I wrote with shock and deep sadness about the loss of our colleague David to COVID-19. I shared some of the many things I’d learned from him, a man whose energy and passion were immense and whose commitment to improving the lives of children and young people was unwavering.…

Like any proper Londoner, I grew up watching EastEnders. Pub landlady Peggy Mitchell, a long running character on the show, was well known for screaming ‘Get out of my pub!’ at anyone who got on her nerves.

I’ve written before about how to play Phil Mitchell, a tic-inspired game based on another EastEnders character, Peggy’s son, Phil.…

Being an aunty’s one of the best things in the world! I adore my niece Bean and we hang out together a lot. She lives just across the road with her mum, Fat Sister, and dad, King Russell. Now, excitingly, there’s a new addition to the household: my nephew, who’s appropriately named Sausage.…

Fat sister is heavily pregnant, and her second child “Sausage” is due any day now. We live really close to each other so it seems logical that when the baby comes I’ll take care of 4-year-old Bean, Sausage’s big sister.

Bean’s very familiar with me, my support team, and with the castle.…

A couple of years ago I was in Portland, Oregon performing at a festival. We were over there for a couple of weeks and had an incredible time. This was partly because of the place and the people, but also because cannabis is legal in Oregon.…

While Bean is very curious and asks lots of questions, one thing she’s never asked me is why I use a wheelchair, she’s always just accepted my chair as part of me.

Since she was tiny, I’ve tried to find books or toys that include disabled characters because I want the things around her to reflect her world and family.…

My niece Bean was four at the weekend. She’s been enjoying telling me her new age, and I’m continuing to enjoy watching her grow in independence and chattiness.

The pandemic’s meant that Bean and I haven’t been able to hang out together as much as either of us would like.…

As a child I loved Lego and it’s younger sibling Duplo. I was a proud member of the Lego Club – in fact 35 years on I still have my membership badge!

And I still love it, but as a dyspraxic with Tourettes, the fine motor control required for more grown up Lego projects has always been in scarce supply for me.…

It’s early Friday evening and London’s bathed in gentle sunshine and I’ve just had some spontaneous interactions with girls which were simultaneously blissfully mundane and soul-enrichingly exceptional.

Claire and I went to meet Bean and Fat Sister in the park after nursery.…