For a few moments earlier this evening I felt desperately alone and extremely vulnerable. It’s unusual for me to ever be on my own because I almost always have someone with me, but a mix-up this evening led to a gap in my care.…

The other day I wrote about my new snowboarding boots. They’ve made a big difference to my mobility and for the last few days I’ve been enjoying being more active both at home and at work.

My office is in a new building and up to now I’ve always been in my wheelchair there.…

I spent much of yesterday sitting on my bed, not because I was tired but because I was home alone. Poppy’s moved out and it was my first day living by myself. Whenever I’m at home on my own I always stay in one soft place and don’t move around, so that if I have a ‘ticcing fit’ I’m as safe as possible.…

The final post of any year feels like a big deal. But at the end of such a busy year this one feels particularly significant.

As the third year of Touretteshero comes to a close I feel incredibly proud of what we’ve achieved.…

I had high expectations for today. I don’t know why – most sensible people would’ve looked at what I had planned and known it was going to be tough. But I didn’t, so I wasn’t prepared when months of pent up anxiety smashed into me.…

I had a wobble today. Not just the physical type (that’s a very regular occurrence) but a more noteworthy emotional wobble. In the last few days I’ve written quite dispassionately about my year of ‘ticcing fits’. I’ve got used to suddenly having my day interrupted by my flailing limbs and loss of speech, and as I described yesterday, it’s become much easier to manage all this.…

It’s my fitiversary. Exactly a year ago today I woke up having a ‘ticcing fit’, and I’ve had at least two a day ever since. As I got dressed this morning I reached for a pair of tracksuit bottoms, but immediately decided against them because they didn’t seem suitable attire for a fitiversary.…

I started writing this post in the early hours of yesterday morning. I was feeling tense and restless and initially I couldn’t work out why, but my mind kept coming back to my wheelchair. Two weeks ago I wrote with joy about collecting my new chair from NHS Wheelchair Services.…

It’s been a long day after a tough night.

I’ve been fighting a cold for the last week or so and my ‘ticcing fits’ have increased as they often do when I’m under the weather. They’d been reasonably manageable until the early hours of this morning but then they suddenly escalated.…

Losing the ability to speak has been a regular feature of my ‘ticcing fits’ since they suddenly intensified last October. This evening Leftwing Idiot and I were out and about when I had a fit. It was mild and relatively easy to manage because I was in my wheelchair, but as usual I wasn’t able to talk.…