Happy World Book Day!

As a child I spent hours secretly scouring libraries, looking for stories and characters I could relate to. I was secretive about it for two reasons – I didn’t have the words to describe what I was looking for, and by the time I was eight I’d already internalised the idea that being disabled or neurodiverse was shameful and not something to be celebrated.…

Content Warning: This post includes discussion of ableism within theatre, negative depictions of mobility aid use by non-mobility aid users, and quotes from other sources that include ableist language and slurs.

Ten years ago this summer we took our first show Backstage In Biscuit Land to the Fringe Festival in Edinburgh.…

I’ve never written an online dating profile. I did start one once but found the mix of expectation, self-promotion, and the pressure to be funny overwhelming. So, I abandoned the idea. But I’m also finding writing this post, which has some similar qualities, quite daunting.…

Two years ago, we launched our Young Artists Development Programme (YADP) through which we commissioned and shared the work of 10 young disabled creatives. ‘Commissioned’ means being paid to produce a piece of artwork. It was great getting to know each artist, and to see the variety of their work took.…

So that’s another year done! In just a few hours we’ll say goodbye to 2023 and welcome in the New Year. For the Touretteshero team, 2023’s been a year of contrasts. We’ve had incredible moments of joy, making and touring new work and becoming an Arts Council England (ACE) National Portfolio Organisation (NPO), and Biscuitland was nominated for a BAFTA!…

We’re just a day away from Christmas, a time that in addition to an abundance of fairy lights and Santa hats, can also be full of apprehension and pressure. For disabled, neurodivergent or chronically ill people this season can have extra complexities whether they’re around managing energy, social interactions, dietary requirements, navigating access barriers or coping with the many depictions of ‘Tiny Tim’!…

I’ve had a new tic for the last few weeks. It’s frequent and consistent and leading to lots of conversations, some intense, some interesting, and some challenging.

This new tic is: “Long live Palestine, long live Gaza.”

This is a tic.…

I love theatre, both as a performer and as an audience member, but as I’ve written and spoken about before, attending performances as someone with Tourettes isn’t always easy. It’s even harder at the moment because I’m Clinically Extremely Vulnerable (CEV) to COVID-19 and so being in busy indoor spaces with no COVID Related Access Provisions isn’t safe for me.…

Today is my twelfth ‘Fitiversary’ – twelve years ago today I woke up moving about frantically and uncontrollably. I’d lost voluntary speech and was experiencing painful dystonic tics which twisted my body. These episodes had been happening on and off for a while and I’d initially referred to them as the ‘dying fish’, but twelve years ago they became a much more regular part of my life.…

As someone who requires skilled support 24 hours a day I’m never really on my own – but if I am it’s because I’ve failed. Failed, that is, to meet my most basic need, the continuous presence of someone who can keep me safe, someone who can administer emergency medication if necessary, who can prevent friction burns from my repetitive movements, or who can turn me over so I can breathe.…