It takes me a long time to do a wee, and I mean a very long time. I can feel that my bladder’s full and needs to empty but the act of doing so can sometimes take up to hour!

My wee trickles out between big pauses.…

In just under a week’s time we’ll be sharing the result of a creative project that’s been over a year in the making.

With a lot of excitement I want to encourage you to look out for our latest film, Me, My Mouth and I!…

A few days ago I read the sad news that author Clive King had died, at the age of 94. While his name never meant a lot to me but one of his most famous books certainly did. Clive wrote Stig of the Dump, without question one of the most influential books of my childhood.…

Shortly after I woke this morning Joyce and Bovie came into my room singing Happy Birthday… It was definitely one of the nicest ways to wake up – ever!

They were soon followed in by another great double act by Innes and Lily who made me a delicious birthday breakfast.…

I’m currently taking a lot of medication for my pain and I’m always keen to find non-drug-based options that I can use as well.

Heat really helps, but I’ve had to stop using a hot water bottle because I’d been using it so much it made my skin go mottled.…

Back in March I wrote about the threatened ban on plastic straws. In it I responded to a lot of the questions non-disabled people were asking when disabled people told them they really do need straws. So if you’re thinking “What about…” or “Just carry your own” or “Why make such a fuss about straws?”…

Last night was the last but one of our holiday. Fran and I had a blissful day, spending the morning by the pool swimming in the sea in the afternoon. The wide beach, with its pale sand, has wooden walkways down to the shore to make it easier for wheelchair users.…

I’ve been on holiday in Spain with Fran for almost a week now. Tomorrow will be our last day and naturally my mind’s started to shift to life back home, particularly the week ahead. When I looked at my support schedule it was worryingly empty, with many of my regular team either away, busy, or moving on.…

I love lots of things about my body. I love the way it looks, the way it feels when I hug someone, and the sensation of a laugh bubbling through it from deep inside.

But …

… since 2011 tics in my legs have meant that I can’t walk or stand (but I have a great wheelchair that helps me get around).…

When we arrived in our hotel room a few days ago the two beds looked quite different from one another. Both were single beds and covered in the same sheets – this was clearly a twin room – but one was higher and had a safety rail running along one side.…