It’s late, I’m in bed, and my body’s been exceptionally wriggly for more than nine hours. I’m exhausted and need to sleep, but despite several rounds of emergency medication I’m still just as wriggly.

But I’ve just seen a tweet on my phone that’s made me want to pause the battle to sleep and write something instead.…

I’ve been resting at home after a minor operation on Friday to change my pacemaker battery. As a result my sleep has been a bit disrupted by pain and discomfort in my chest. But last night it was disrupted by something very different – “Iron Ore”

Well “Iron Ore, Yeah!”…

It’s 6am, early morning light is creeping in under my pale blue blind, and through the gap I get a glimpse of the garden outside.

I know the lamp-post’s out there too, but it went off about an hour ago and I can’t get a clear view of it when it’s not showing its illuminated orange head.…

Tics can add an extra element of danger to anything, even getting a haircut. For years I’ve had the same hairdresser, Ravi. She’s patient and fearless and knows exactly what to do with curly hair.

A few weeks ago Ravi cut my hair really short.…

It’s the second day of our three-day take over of Tate Modern’s Tate Exchange space and we’ve transformed the fifth floor of the new building into Biscuit Land, with loads of different interactive areas and activities. Once a day we’re bringing each of these areas to life in a new way, with a mobile and specially adapted performance of our stage show Backstage In Biscuit Land.…

Usually my “ticcing fits” are characterised by my inability to speak for the duration of the fits. But sometimes it works the other way round and my tics rattle on all the way through. That’s what happened this afternoon, during a hectic email catch-up session, when my tics clearly decided that a mere fit was no reason to stop being productive.…

I started the month with a post which I now freely admit was an April Fool – congratulations if you spotted it!

Now, a couple of weeks in, I have to share something that I really wish was just a thinly-disguised joke, but it isn’t.…

I was hanging out with Chopin all weekend and we had a lovely restful time – eating chocolate, watching films and pottering around the castle.

She arrived with a very exciting gift. It was a massively over-exciting gift in fact – the minute my hands touched it my tics went into overdrive!…

Access to Work is a vital equalising scheme that provides the practical support that disabled people in employment need to do their jobs. For me this means covering the cost of my support worker and the additional costs of accessible transport to and from work.…

So Teresa May has announced a general election on 8th June!

Innes, my support worker, announced this on the bus half an hour ago as we were on our way back from a hospital appointment.

The news surprised, confused, excited, terrified and depressed me all at once.…