It’s almost exactly ten years since I started using a wheelchair – tics in my legs had caused repeated injuries and moving around had become increasingly fraught.
But the decision to start one was made harder by the negative ways that wheelchairs are often seen in our society.…
The Conservatives have been in power for over decade now, and right from the start they’ve been promising a big announcement of a plan to ‘fix’ social care. As a Social Care user this has always made me very nervous because politicians, especially the Tories, understand very little about the reality of disabled people’s lives.…
It’s the Conservative Party conference this week and it’s been all over the news.
This afternoon Prime Minister Boris Johnson gave a speech about ‘levelling up’. I’m not sure what this means for the country and I’m fairly sure Boris doesn’t either, but I do know what it means for my tics:
“Boris Johnson levelling up with stilts made of shit.”…
Last year I wrote a post about the power of taking breaks. I described how I’d learnt to recognise when I needed to stop, and the type of break my body or mind required – sometimes this involves resting and sometimes it involves moving about.…
It’s been almost ten years since I moved into the castle, it’s been the same length of time since I started needing overnight care.
Initially I lived with my flatmate Poppy, and my support worker would sleep on a fold out bed in the living room.…
I wrote recently about burn out and the steps we take at Touretteshero to help prevent it. While I’m lucky not to get burnt out by my work as an artist, I’m feeling utterly exhausted by the relentless work of being a disabled person living in the UK.…
In January I wrote with shock and deep sadness about the loss of our colleague David to COVID-19. I shared some of the many things I’d learned from him, a man whose energy and passion were immense and whose commitment to improving the lives of children and young people was unwavering.…
Like any proper Londoner, I grew up watching EastEnders. Pub landlady Peggy Mitchell, a long running character on the show, was well known for screaming ‘Get out of my pub!’ at anyone who got on her nerves.
I’ve written before about how to play Phil Mitchell, a tic-inspired game based on another EastEnders character, Peggy’s son, Phil.…
Being an aunty’s one of the best things in the world! I adore my niece Bean and we hang out together a lot. She lives just across the road with her mum, Fat Sister, and dad, King Russell. Now, excitingly, there’s a new addition to the household: my nephew, who’s appropriately named Sausage.…
We’re starting two weeks of research and development for a new show soon. It’s going to be called Burnt Out In Biscuit Land and in it we’ll be re-visiting the surreal world my tics create around me – the setting for our first stage show back in 2014.…
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