I had a very odd experience the other night when a dream and a ‘ticcing fit’ became intertwined. This has happened before but on this occasion it was particularly strange.

After the fit had finished I made a quick note on my phone about the dream and what had happened after I woke up.…

I woke up with a start yesterday morning after a strange dream.

I’ve described before in this blog how I sometimes overreact to tiny frustrations, and what woke me was an overreaction, but this time it was entirely imaginary.

In my dream I was trying to roll up a sheet of sticky-back vinyl.…

In the early hours of this morning I woke with a start. I’d been dreaming I was in a house with Fat Sister. It was my house, although it wasn’t the castle. We were in the bathroom and she was helping me get washed and dressed.…

Cushions are one of the crucial safety features for me at the castle, loads and loads of them, including some shaped like biscuits and some like clouds.

I had a long “ticcing fit” in the early hours of the morning yesterday while Will was supporting me.…

I’ve been enjoying something of a dip in the regularity and severity of my ‘ticcing fits’ in the last couple of weeks and one benefit has been a welcome increase in the number of uninterrupted nights sleep I’ve had.

But this lucky streak came to an end last night when I woke at 5am having a little fit.…

I woke up to a ‘ticcing fit’ at 4.00am yesterday morning, and for several hours afterwards I struggled to get back to sleep. But I was still awake when the birds started chirping, and inevitably, my tics had something to say about it:

“Birds, I can hear your cockney accents.”…

This morning I woke from a vivid dream feeling foolish for taking a silly risk. It took me a moment to realise I’d been dreaming and that I wasn’t about to get told off by my friends for dangerous decision-making.

Recalling the dream made me laugh, so for your amusement here it is:

I’d been to a hospital appointment in town by myself and for some reason I’d decided to experiment with walking through Covent Garden rather than using my wheelchair.…

It’s Saturday morning (although only just). I’m lying awake a little after midnight and I’m surrounded by much more noise than normal. There’s rain relentlessly beating down outside and I can hear the high-pitched squeal of water sloshing over gutters. The rhythmic sound of the rain is punctuated periodically by groans of thunder.…

I’ve mentioned previously the buzzer I keep strapped to my hand while I’m asleep so I can raise the alarm if I have a ‘ticcing fit’ during the night. I’ve also mentioned the recent reoccurrence of my face-hitting tic. Sometime in the early hours of this morning these two things came together, and I was woken suddenly by the buzzer hitting me smartly in head just above my eye.…

The other night I had a ‘ticcing fit’ in the middle of the night. My muscles had gone very tense and my body was so locked up I couldn’t press my buzzer to raise the alarm.

Thankfully my night time support worker heard the unusual noises I was making and came to help.…