So, I knew we’d made a documentary. I’d put the very first budget together, been involved in choosing the team, chatted to camera several times and watched a number of different edits, providing detailed comments about each one. But it still felt very unreal when I saw our film listed on my TV guide.…

I’m lying by the pool with the Spanish sun soaking into my body. Fran and I arrived in Mallorca yesterday and we’re here for a week of total rest – writing blog posts is the only work-related activity permitted and even that’s carefully supervised by Fran to make sure I don’t overdo it.…

It’s just after six in the morning. For the last few days I’ve woken super-early every day. Today though, rather than making myself go back to sleep, I’ve embraced the early start.

The light is incredible, bright sunshine’s already bouncing off the roses in the garden.…

We’ve been in Zurich for the last few days. The flight back yesterday morning was only an hour and twenty minutes. But for a wheelchair user flying is nearly always stressful and yesterday’s flight was no exception.

For the last couple of years I’ve been experiencing chronic pain and fatigue, and more recently loads of issues with my bladder as well, which mean I need to go to the toilet very often and don’t get much warning.…

It’s been a tough day, not because anything dramatic has happened but simply because I’ve been feeling lousy.

This isn’t a one off– I’ve been struggling with chronic pain, nausea and fatigue for months.

I’ve got used to feeling ill, to waking up overwhelmed by nausea, to constant nagging pain in my back and hips, and to fatigue muddling my thoughts.…

It’s been a beautifully sunny Sunday. I’ve been hanging out with Erik, who’s a friend and the part of the Touretteshero team.

Fat Sister, King Russell and their little Squidge came round for a couple of hours, while Leftwing Idiot was sunbathing in the garden.…

Yesterday we flew for the few hours it takes to get from New York City to Portland. This is our first time in the state of Oregon and we passed over snow capped mountains and dense forests on the way. The city’s nestled in an extraordinary landscape with ribbons of trees extending into the outskirts.…

In thirty minutes Lily will arrive to do my night support and as soon as she gets here we’re going to head straight out for a swim. But by the time she gets here I want to be out of the melancholy mood I’m in at the moment.…

A few months ago I wrote about how much I’d been enjoying listening to writer Bill Bryson’s adventures as I went to sleep. My chronic pain over the last couple of years has been having an increasing impact on me, and on how much time I spend in bed, and audiobooks help me feel relaxed and less lonely in the early hours.…