The tent was incredibly hot when I woke up and although it was early I could feel the heat of the sun through the synthetic fabric. I opened the flaps to let in a much-needed breeze and the daylight flooded in too.…
Today started earlier than I’d have liked. It was 4:00am when I woke up having a ‘ticcing fit’. I was face down, in a sleeping bag, unable to move or make much noise. All I could manage was a weird little bark and I was fairly sure this wouldn’t be enough to wake Lottie, but fortunately after a few minutes she came to my rescue.…
For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.
This morning Fran, Will, Lottie and I packed the car with two tents, two wheelchairs and more glitter than four people could ever need, and headed for Somerset.…
It’s been gloriously sunny and this evening Will and I soaked it up as we went from work to a pub in Brixton, with him pushing his bike and me pushing myself in my wheelchair. We were off to meet our friends Bunny and Fran for a drink.…
For the last few days I’ve been ready, both mentally and physically, with all my packing done, to leave London and plunge into the busy, beautiful and often muddy world of Glastonbury.
This morning Fran, Will, Lottie and I packed the car with two tents, two wheelchairs and more glitter than four people could ever need, and headed for Somerset.…
A couple of days ago one of my tics took me aback and made me laugh with surprise:
“Scotch egg castle and the exasperated carrot.”
It wasn’t the content of the tic that made me chuckle but the fact that I pronounced ‘castle’ and ‘exasperated’ with a short ‘a’.…
There was no delay in getting started on day two of Idea Amplifier – everyone arrived early (despite the clocks changing), eager to start.
We’d all been reflecting on four questions overnight, so our first job this morning was to share our thoughts about each of them.…
I’ve just re-read the post I wrote on New Year’s Eve exactly a year ago and it reminded me what a decidedly rocky start I’d had to 2014. On Boxing Day last year the muscles in my hands unexpectedly and very suddenly seized up.…
In the last couple of weeks I’ve been working on a big funding bid at work for our inclusion project. In the process I’ve looked at a lot of research by some great organisations and it got me thinking about all the fantastic groups and services that have helped me and the families I support.…
On Friday, Bunny, Fran, Jolie and I saw an incredible piece of theatre, Hopelessly Devoted, at the Roundhouse in Camden. The play, written by Kate Tempest, is moving, funny and thought-provoking. The characters are brilliantly drawn and the performances totally absorbing – I’m so glad I saw it.…
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