Last night King Russell and I were hanging out at the castle when we suddenly saw a tiny mouse dart under the fridge. Neither of us was too bothered by this, but my tics immediately started chatting to the new rodent resident.…

(This is transcript from a blog I wanted to write but was in too much pain to do so at the time. I recorded it on my and wrote it later.)

A few minutes ago I was in absolute agony because of my locked up hands.…

Whenever I’m faced with a new challenge I spend the first few days working out what’s possible, what’s not, and how things can be adapted to make a task or situation easier.

Two days ago I lost the use of both my hands in the course of a single day.…

On Monday my Festive Outburst was “Lamp-post, shall we do ‘Secret Santa’?”

When I shared this on Facebook, Fran, who was supporting me, said ‘So what would you get the lamp-post for Secret Santa?’

She didn’t have to wait long for an answer because, predictably, my tics were quick to take the bait.…

I’ve written several posts about my amazing new wheelchair, but I’m also still using my NHS chair a lot too because it’s much better for inside the castle or anywhere where with tight spaces.

The two chairs have different braking systems and I sometimes struggle to remember which chair I’m in.…

Yesterday I wrote about the arrival of a new piggy, bringing my collection up to eight. I keep these colourful, squeaky pigs on display in my living room.

I love the pigs but find them extremely over-stimulating. They make me instantly and inexplicably excited and my tics overreact wildly.…

I settled into bed last night chatting happily as usual to the lamp-post I can see from my window. Then, as I lay down, I spotted something else familiar and my tics responded immediately.

“Oh there you are cartoon star.”
“Where’ve you been cartoon star?”…

I woke up to a ‘ticcing fit’ at 4.00am yesterday morning, and for several hours afterwards I struggled to get back to sleep. But I was still awake when the birds started chirping, and inevitably, my tics had something to say about it:

“Birds, I can hear your cockney accents.”…

The UK’s been bracing itself for a massive storm for several days now. As I lie in bed psyching myself up for the day ahead, the big trees I can see from my window are blowing about wildly. They don’t look like a rolling ocean today, more like hyped-up rockers banging their big heads frantically to their favourite tune.…

I’ve been living at the castle for almost two years now. Since the very beginning I’ve had a tumultuous relationship with the lamp-post I can see from my bedroom window. Every night I shout at it as I go to sleep – at times this is rude, but more often it’s vaguely affectionate.…