In February last year, we celebrated Touretteshero’s 10th birthday with a big party in Battersea Arts Centre’s Grand Hall. The place was packed with the love and laughter of those who’ve helped us transform Touretteshero from an idea into an organisation with a mission to change the world.…
So we’re in 2021 and the New Year is often a time to reflect on the changes we’re going to make in the year ahead. Eleven years ago it was the New Year that prompted me to start writing this blog, and it will be ten years ago this year that I started being open and honest about the episodes of intense tics I was experiencing.…
I’ve been using an iPad to draw with for just over a year. It’s changed my relationship with drawing and made the process much more enjoyable and less stressful for me – mainly because there’s an ‘undo’ button for when my arm tics cause chaos.…
I’ve written a lot about the view from my window. It’s mainly been about the lamp-post which my tics often chat to as I’m settling down to sleep. I’ve also mentioned the trees, but generally just in passing. However, during lockdown they’ve become a constant reassuring presence, their massive bulk marking out the edge of my world.…
This evening, for the ninth time, people across the country stood on their doorsteps or leaned out of their windows and make noise in solidarity with people providing care during the pandemic.
This weekly ritual has become a poignant marker of time for me and many other people.…
Just over a week ago it became clear that in order to stay as healthy as possible during the current COVID-19 pandemic, I needed to self-isolate. I always need close physical support from others to complete many essential daily tasks like washing or moving in and out of my chair, but this close contact increases the risk of me catching the virus or me passing it to others, so I also decided to limit the number of different people providing my support.…
What a whirlwind the last few months have been both here in Biscuit Land and in the wider world! Over the last few days we’ve all been slowing down and unwinding ready for Christmas, and this is the first proper break I’ve had since I went to Spain with Chopin back in June.…
Back in 2015 Leftwing Idiot and I wrote a short relay play called Light Of My Life about the strange relationship I have with the lamp-post I can see from my bedroom window.
We mixed tics with chosen language without identifying which was which.…
As a child growing up in 80s London, I remember power cuts being a fairly regular occurrence. There was something scary but exciting about them, and I always knew where the candles were, just in case.
In my adult life they’ve been less frequent, and I definitely don’t have any candles on hand.…
There was something about the light in my kitchen just now that triggered a wave of contentment in me. My flat feels still, calm, and easy to be in.
It’s just before 8am and I’ve had an unsettled night’s sleep but I’ve got a day off so I feel no stress about this, safe in the knowledge that I’ve got the whole day to rest and catch up.…
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