I’m saying, “I love cats” a lot at the moment – I mean a ridiculous amount. Every few minutes I announce my adoration of felines, and it’s driving me crazy.
The thing is if I’m honest, I’m not that fussed about cats.…
I’ve just come through to my bedroom to go to bed. The main light was off already and my bedside light was glowing gently. Two Baclofen tablets were laid out ready for me to take, one at midnight, one at 6am.…
Ruth was supporting me as usual last night, but she didn’t come alone – her niece, Shaniah, and nephews Adoni, Zackiah and Shiloh came too.
The first thing Shiloh asked was ‘Can we play in your wheelchair?’ This is a favourite activity and previous sleepovers have seen wheelchair dancing, wheelchair mazes, and wheelchairs loaded up with pigs.…
I’ve spent the last week at the Royal Court Theatre taking part in a writing group. Having the time to think and talk about writing in depth with other writers has been brilliant.
Will’s been supporting and he seems to have enjoyed the experience too.…
On Sunday night Ruth and her nine-year-old nephew Adoni came to stay at the castle. I know Adoni likes making things so I asked if he’d like to have a go at putting together a model flying pig that I’d been given for my birthday.…
As well as being a part-time superhero and working one day a week for Touretteshero, for four days a week I work as a project coordinator for a children’s organisation in London. My role covers three main areas:
1) Fundraising
2) Supporting volunteers
3) Developing new projects and services
I’ve worked there for four years and in that time I’ve:
1) Secured over half a million pounds in funding for the organisation
2) Supported over three hundred regular volunteers
3) Helped triple the services the organisation provides
I’m telling you this now not because I want to brag but to give you a sense of the work I do and because yet another Conservative minister has suggested that some disabled people are “not worth” the minimum wage.…
Exactly a week ago our Kickstarter Campaign came to a triumphant end. We’d successfully raised all the money we needed to take our show, Backstage In Biscuit Land, to the Edinburgh Fringe in August.
Everyone who backed us was able to choose rewards, and these will be sent out later in the year.…
As I mentioned the other day, my ‘ticcing fits’ are a lot less frequent than they’ve ever been. But even so they’re still happening about once a day most days and I can still go from being fine one moment to being in real danger the next.…
Wow! What else can I say? Today Tate Britain was completely transformed!
Hundreds of people, some with and some without Tourettes came together to get creative, socialise and reinvent the Gallery spaces as part of We Forgot The Lot! – our big inclusive event for children and young people.…
I remember very clearly the first event for people with Tourettes I ever attended. It was a Tourettes Action meeting held one evening in a hall in central London. Up until then I’d never met or spoken to anyone else with Tourettes, and the only people I’d seen with tics were on TV.…
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