I had a long and painful ‘ticcing fit’ the other day. Will was supporting me and showing a new support worker the ropes. When the fit had nearly finished Will said ‘Can you move your legs?’ Without thinking I said yes, reached out, and moved them with my hands.…
I was out having a drink with Poppy and Will last night when I had a ‘ticcing fit’. They both helped me and it was over quite quickly. But just before it ended, my tics started asking them how unpredictable I am.…
Late the other night I was having a ‘ticcing fit’ on my way back to the castle. My body was completely locked up and I couldn’t move – my eyes were open but all I could see was a small patch of cloudless night sky.…
On Friday afternoon I sat in our sunny playground and cried. My colleagues were all busy doing their work in the office, but I couldn’t do mine – I was stuck on the phone to the Department of Work and Pensions (DWP), pleading with them to pay money owed to my employer for the cost of my support at work.…
The traditional way to start a new month is with a pinch and a punch. I certainly upheld the pinching part during a ‘ticcing fit’ I had earlier today. It was while I was in a meeting with Leftwing Idiot, Jolie, and Jess Mabel Jones (AKA Chopin) about BIBL.…
The ‘ticcing fit’ I had the other evening seemed pretty run-of-the-mill to start with until, much to Will’s amusement, I suddenly started going on about cells. This started simply enough:
“Terror cell, Duracell or carousel? Choose.”
Followed closely by:
“Cellphone, cellophane, sell a cat.”…
Describing exactly what it feels like to have a ‘ticcing fit’ to anyone who’s never had one is always a struggle. It’s something that comes up a bit in Backstage in Biscuit Land as well as elsewhere in this blog.
The other night I was trying to convey a specific sensation to Leftwing Idiot.…
I woke up relaxed and happy after a laid-back weekend. Since July all my weekends have been packed full of performances, festivals or work. It’s been an amazing time, but having a proper weekend off has been lovely too.
Yesterday I hung out with Fat Sister.…
A week ago I left the castle with my support worker and got on a bus into town. It was a warm Saturday morning so waiting at the stop was no hardship. It was a good job it wasn’t because three buses went by before one came along where the wheelchair space was free and we could get on.…
A couple of days ago the renewal form for my Disability Living Allowance (DLA) arrived in the post. I was relieved to see they were for DLA because it meant I wasn’t yet on the list to be assessed for the controversial new Personal Independence Payment (PIP).…
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