Last night my overnight support worker and I went to Secret Cinema’s production of Moulin Rouge. Poppy’s been working on it for months, and she kindly arranged the tickets for us to go.

The show was amazing, immersive, vibrant and exciting.…

Usually my “ticcing fits” are characterised by my inability to speak for the duration of the fits. But sometimes it works the other way round and my tics rattle on all the way through. That’s what happened this afternoon, during a hectic email catch-up session, when my tics clearly decided that a mere fit was no reason to stop being productive.…

It’s Easter, typically a time of bunnies and chicks, but here at the castle a different animal is taking centre-stage – pigs!

It all started a couple of days ago over lunch at a local café with Leftwing Idiot and Innes, when the subject of the Pig Fairy came up.…

I screeched ‘Help, help, help’ uncontrollably. Innes, my overnight support worker, rushed through to my room and after assessing the situation for a moment, took out her mobile phone and began filming me!

After three minutes of squealing and flapping I was able to explain to Innes what’d got me so worked up.…

On Christmas day, after all the food had been eaten, the presents unwrapped, and with the festive telly murmuring away in the background, something magical happened: I found a pig sticker.

It was in the hall, tucked into a nook.

Then I found another, and another.…

As I explained yesterday my body’s struggling with the change in time zone, with exhaustion, and with being somewhat run down. This means I’m having more frequent and intense ‘ticcing fits’ than usual.

I had a fit this afternoon that lasted over 40 minutes.…

For the last five years I’ve experienced sudden intensifications of my tics several times a day. These episodes, which I call ‘ticcing fits’, had been happening on and off for years, but in October 2011 something changed and they became a very regular part of my life.…

There are some tough things about having Tourettes, and for me one of them is disrupted sleep.

At 5:30 this morning I woke up having a ‘ticcing fit’. At first I wasn’t too worried about dropping off again, but it went on for a while and then, despite trying a variety of strategies, I couldn’t get back to sleep.…

A couple of days ago I wrote about how erratic pre-fit behaviour had led to me having my first ever ticcing fit in a sink.

Yesterday I proved that my ability to behave erratically isn’t limited just to ticcing fits. While I was getting ready for bed tonight, helped by Innes, I got over-excited by the sensation of my electric toothbrush.…

It’s been the Unlimited Festival at the Southbank Centre this week. The Festival celebrates the artistic vision and originality of disabled artists. It’s included amazing new pieces, work in progress, and a wide range of talks, workshops and events.

Tonight the brilliant Heart n Soul celebrated their 30th birthday with an astonishing building-wide take-over of the Royal Festival Hall.…